How disabled young people with degenerative conditions and their parents make choices about care and services

Disabled young people with degenerative conditions and their parents face many service-related decisions. Previous research has typically focused on professionals’ work with these families during choice-making situations. This study shifted the focus to look at the realities of choice-making processes within families, exploring the respective roles and experiences of young people and their parents. It looked at: • the young people’s perspectives on making choices with parents and peers