Referendum attempt on Assisted Dying Bill voted down in Isle of Man
A move requiring a referendum to be held before an assisted dying law could come into effect in the Isle of Man has narrowly failed. The island’s chief minister Alfred
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Tag: MotorNeurone Disease
Shortage of MND drug causing patients anxiety as charity seeks resolution
Charity leaders are set to meet with the Government to discuss a shortage in the supply of the only licenced medicine that treats degenerative condition motor neurone disease (MND), with
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Targeted help needed for those facing ‘impossible choices’ between heat or medical equipment
More help is needed for vulnerable people this winter as those with particular health issues and their families face “impossible choices” on energy costs, a charity has said. Some families
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Scots charity announces ‘historic’ investment in MND clinical drug trial
A charity has announced a “historic” £2 million investment in what is said to be the UK’s biggest ever motor neurone disease (MND) clinical drug trial. MND Scotland has also
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‘Incredibly rewarding’ to improve lives, say speech and language therapists
Speech and language therapy (SLT) is an “incredibly rewarding” job despite current challenges around staffing and waiting lists, two senior therapists have said. SLTs offer support to everyone from pre-term
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Health Secretary releases motor neurone disease research funding after criticism of delays
The Health Secretary has said he is “fast-tracking” £50 million of funding for motor neurone disease (MND) research after the Government faced criticism for failing to release the promised money.
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Barclay pledges MND funding announcement ‘in days’ amid concerns over whereabouts of money
The Health Secretary has pledged to make an announcement on motor neurone disease (MND) research funding “in days” amid a row over the whereabouts of the money. More than a
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Government should listen to Doddie Weir and ensure access to MND research funding, MP says
The Government should listen to Doddie Weir and fulfil its funding promise on motor neurone disease research by making the money easier to access, a Conservative MP has said. Rugby
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Rob Burrow: Government has ‘blood on its hands’ over £50m MND research delay
Rob Burrow says the Government has “blood on its hands” over the delay in delivering on a promise to provide £50million towards efforts to find a cure for motor neurone
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Campaigners express anger at Government over access to promised funding for MND research
Campaigners have expressed “anger” with the Government that “red tape” is making it too difficult to access promised funding for motor neurone disease (MND) research. They are calling for “urgent
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