Hundreds of children plagued by a life-shortening disease have written to the Prime Minister begging her for access to a “life-saving” drug. More than 1,000 personal letters are to be
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Cystic fibrosis patients are to stage protests over the lack of availability of a treatment which has been hailed as a “major step forward” for people with the condition. Last
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A drug treatment that targets the underlying cause of cystic fibrosis (CF) has been shown to slow irreversible lung damage by more than 40%. The drug, marketed as Orkambi, was
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Almost 3,000 people with cystic fibrosis will miss out on a “breakthrough” treatment after the health watchdog turned it down for use on the NHS. The National Institute for Health
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A family whose severely disabled son’s Disability Living Allowance state benefit was taken away while he was in hospital have won a landmark battle against the Government at the UK’s
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The Cystic Fibrosis Trust and Belfast Health & Social Care Trust Charitable Trust Funds have co-funded a new project to provide additional benefits advice to people with cystic fibrosis in
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