Cystic Fibrosis – Care Appointments

Easing lockdown cannot be at expense of half million immunocompromised people, charities warn

By Jane Kirby, Reporter9th July 2021News England

Sixteen health charities have joined forces to urge the Government to support around 500,000 people for whom the Covid-19 vaccines may give less protection. With most of England’s Covid rules

Kevin Bridges challenges public to double his £20,000 children’s hospice donation

By The Press Association25th March 2020News Scotland

People have been urged to help double a £20,000 donation comedian Kevin Bridges made to a children’s hospice organisation in memory of a “wee pal”. He donated the sum to

‘Special day’ as deal reached to provide lifesaving cystic fibrosis drugs on NHS

By Jemma Crew, Health and Science Correspondent24th October 2019News England

A “long hoped-for” deal has been reached to provide lifesaving cystic fibrosis drugs on the NHS which could help thousands of sufferers. Around 5,000 NHS patients will now have full

‘Landmark moment’ as cystic fibrosis patients in Scotland access to Orkambi drug

By Katrine Bussey, Scotland Political Editor12th September 2019News Scotland

Hundreds of cystic fibrosis sufferers in Scotland will be able to get drugs which can help extend their life, after a deal on costs was reached. Pharmaceutical firm Vertex International

Cystic fibrosis lung damage can be sniffed out by dogs in world-first study

By Nina Massey, Science Correspondent15th August 2019News England

Dogs can sniff out bacteria that is a major of cause of lung damage in people with cystic fibrosis before it takes hold, according to a study. Research found the

Expert suggests medicinal cannabis should be embraced like penicillin

By Sally Wardle2nd May 2019News England

Medicinal cannabis should be welcomed by UK doctors, like penicillin was decades ago, to unlock its potential, an expert has suggested. Professor David Nutt (pictured), from Imperial College London, warned

Thousands of packs of cystic fibrosis drug destroyed amid pricing deadlock

By Sally Wardle27th March 2019News England

Thousands of packs of a key cystic fibrosis drug expired and were destroyed amid a row over its cost to the NHS, it has been revealed. Talks between Vertex Pharmaceuticals

MPs call for ‘urgent review’ of the way medicines are approved for rare diseases

By Alain Tolhurst, Richard Wheeler and Joshua Thomas21st March 201921st March 2019News England

MPs have called for an “urgent review” of the way medicines for rare diseases are approved as patients are being “left behind” under the current system. Labour MP Liz Twist

Mother takes legal action against NHS for access to Orkambi drug

By Tom Pilgrim14th November 201823rd December 2018News England

The mother of a girl with cystic fibrosis is taking legal action against the NHS after it refused funding for a drug which could extend her daughter’s life. Sarah Burgwin,

Eight-year-old urges company to lower price of cystic fibrosis drug

By Sally Wardle15th August 2018News England

An eight-year-old boy with cystic fibrosis has urged a pharmaceutical company to lower the price of a drug so it can be made available on the NHS. Orkambi received its

Tag: Cystic Fibrosis

Easing lockdown cannot be at expense of half million immunocompromised people, charities warn

Kevin Bridges challenges public to double his £20,000 children’s hospice donation

‘Special day’ as deal reached to provide lifesaving cystic fibrosis drugs on NHS

‘Landmark moment’ as cystic fibrosis patients in Scotland access to Orkambi drug

Cystic fibrosis lung damage can be sniffed out by dogs in world-first study

Expert suggests medicinal cannabis should be embraced like penicillin

Thousands of packs of cystic fibrosis drug destroyed amid pricing deadlock

MPs call for ‘urgent review’ of the way medicines are approved for rare diseases

Mother takes legal action against NHS for access to Orkambi drug

Eight-year-old urges company to lower price of cystic fibrosis drug

Waspi women criticise ‘bizarre and unjustified’ ruling out of compensation

Sara Sharif’s father and stepmother branded ‘executioners’ as pair are jailed for life

Letby legal team seeks fresh bid to challenge convictions of child serial killer

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Tag: Cystic Fibrosis

Easing lockdown cannot be at expense of half million immunocompromised people, charities warn

Kevin Bridges challenges public to double his £20,000 children’s hospice donation

‘Special day’ as deal reached to provide lifesaving cystic fibrosis drugs on NHS

‘Landmark moment’ as cystic fibrosis patients in Scotland access to Orkambi drug

Cystic fibrosis lung damage can be sniffed out by dogs in world-first study

Expert suggests medicinal cannabis should be embraced like penicillin

Thousands of packs of cystic fibrosis drug destroyed amid pricing deadlock

MPs call for ‘urgent review’ of the way medicines are approved for rare diseases

Mother takes legal action against NHS for access to Orkambi drug

Eight-year-old urges company to lower price of cystic fibrosis drug